It is wonderful to see how True Blood fans support various charities linked to our favorite show. One of the charities we continue to support here at The Vault is THE CHOROIDEREMIA RESEARCH FOUNDATION. E.J. Scott, boyfriend of True Blood actress Deborah Ann Woll, has CHOROIDEREMIA.
Last year E.J. collected many donations with his campaign to lose weight for charity. Now he is ready for the next step and will run his very first half-marathon on August 1st in Chicago and on October 10th the FULL Marathon…. BLINDFOLDED.
E.J. explains what Choroideremia is and why he will run blindfolded.
“Choroideremia is a degenerative and hereditary eye disease that attacks your peripheral vision and erodes it over time until total blindness. I have this disease and am now “legally blind”. I walk with the aid of a walking cane now and if a treatment or cure is not found I will go blind. When? Hard to say. It’s different for everyone.
What’s worse is that my 23 year old brother, Kevin also has this disease and my 5 year old nephew, Liam. There’s a 50/50 chance that my 1 year old nephew, Aidan, has it as well. My mother, sister and aunt are all carriers. And when my grandfather was alive he went blind from it in his 40′s.
WHY AM I RUNNING BLINDFOLDED? As a side effect of the disease my eyes are really sunlight sensitive. So much so that I need to be blindfolded for the Marathon. I will have a guide for both marathons. Each are cousins of mine and experienced runners.”
EJ and his 5 year old nephew, Liam
Last month E.J. received the Chris Farley Award for his charity work for the THE CHOROIDEREMIA RESEARCH FOUNDATION. The Vault’s co-admin Lynnpd was there and spoke with Deborah and E.J. It was an emotional evening and both expressed their gratitude for the support of the True Blood fans. Read more about this event here.
What does it mean to you that True Blood Fans have stood up and supported the CRF?
Deborah: It’s shocking. I never thought in a million years that is what might come out of this, but it is one of the most touching and life changing things that has happened since I’ve started working on the show.
EJ: It’s always impressive to me when somebody cares enough or gives enough. My friend Johnny, his little girl who is like five or something just gave me $9 or $8 from her piggy bank as a donation and it trying to get some more. It’s awesome.
SUPPORT E.J. and help him to reach his goal of raising $100.000 this year for THE CHOROIDEREMIA RESEARCH FOUNDATION.
You can make your donation through his blog:
http://ejcurechm.blogspot.com/
This link will go directly to the foundation and E.J. will be credited with the amount that you donate so he can keep track of the $100,000 he is trying to raise.
You can write a CHECK to The Choroideremia Research Foundation
23 East Brundreth St
Springfield, MA 01109
In the memo box mention EJ Scott.
Donations are tax deductible for US residents
For more information about the CRF visit curechm.org
EJ Scott’s CRF page on Facebook facebook.com/group.php?gid=30530756158
To learn more about EJ, you can read the interview we did with him last year here.
Big kudos for EJ. Two runs blindfolded … absolutely amazing. I plan on lending my support.
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Awesome Shad!! Thank you and the Trubies so much for the constant support. Means so much to me, deb and my family. :)
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EJ Wow running blindfolded, glad you will have the support of cousins that run. I donated in your name. Good luck!
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Good Luck and Best Wishes
From My family we keep yours in our prayers
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THATS GREAT! IM VERY PROUD OF HIM.
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