Archive for the ‘Choroideremia Research Foundation’ Category

A second charity auction for the CRf of this unique True Blood Season 2 DVD signed by Alan Ball and many cast members. Only weeks ago EJ Scott, Deborah Ann Woll’s boyfriend, listed this item on eBay for a charity auction to benefit the Choroideremia Research Foundation. Unfortunately the auction winner turned out to be a loser who didn’t pay the $1500 bid he had placed. Shame on you!

So this time around only bid if you are serious. Deborah was heartbroken when the auction failed because of dishonesty.

As an extra bonus prize, Deborah will sign a personalized headshot for the auction winner!

For more info about the items and to place your bid: http://r.ebay.com/uyWVMq

True Blood actors and the charities they support – Part 2

Posted by Shadaliza On February - 20 - 2011

Over the years we have come to learn more and more about the True Blood actors; their work, their passions and the charitable causes they support. Some support their charities quietly, almost hidden from the public eye, while others Twitter and Facebook and have become an icon for the organization of their choice.

In Part 2 of  True Blood actors and the charities they support we take a look at Ryan Kwanten, Denis O’Hare, Deborah Ann Woll, Mariana Klaveno, Chris Bauer, Tara Buck and Dale Raoul. Read Part 1 here.

Ryan Kwanten‘s support to cancer related causes like Susan G. Komen Race for the Cure, is of a very personal nature. Ryan’s mother is a two time cancer survivor and has been in the clear since 2006. We send all our best wishes to Mom Kwanten.

The Susan G. Komen Race for the Cure Series raises significant funds and awareness for the fight against breast cancer. This flagship fundraising event will also celebrate breast cancer survivorship and honor those who have lost their battle with the disease.

Ryan ran the race on March 14, 2010. Over $400,000 was raised for the battle against cancer.

http://ww5.komen.org/

Denis O’Hare lost his mother to ovarian cancer in 2008. To help raise money to fight ovarian cancer the O’Hare family organized the “Karene O’Hare Ovarian Cancer Memorial Run” on September 11, 2010 in New Quarter Park, Williamsburg, VA.

Denis participated in the 8 mile run and donated signed True Blood merchandise for the charity auction.

http://www.hareandtortoiserun.com/

E.J. Scott, the partner of True Blood actress Deborah Ann Woll, has Choroideremia. Choroideremia (CHM) is a rare inherited disorder that causes progressive loss of vision and leads to total blindness. At this time, there is no treatment or cure for this disease. Doctors working on a treatment say they are close but need only a couple of million dollars to make a real difference.

Deborah and E.J. try to raise funds for the Choroideremia Research Foundation and raise awareness for the disease. Last year E.J. ran the Chicago marathon blindfolded because his eyes are very light sensitive. You can read about the experience on his blog: http://ejcurechm.blogspot.com/

For more information about the CRF visit curechm.org

Mariana Klaveno is a volunteer for the The Art of Elysium. She entertains sick children in hospitals with improv games, small plays and animated storytelling.

The Art of Elysium encourages working actors, artists and musicians to voluntarily dedicate their time and talent to children who are battling serious medical conditions. They provide artistic workshops in the following disciplines: acting, art, comedy, fashion, music, radio, songwriting and creative writing.

http://www.theartofelysium.org

Chris Bauer supports Stomp Out Bullyin, and The Trevor Project.

“These are great organizations that advocate compassion, tolerance, and community responsibility to shun bullying, kid on kid violence, peer pressure, etc.” Chris tells the Vault exclusively. “Like most of us, I’ve been on both sides of the experience. the more adults advocating social strategies that keep kids safe to grow and evolve without threat from others, the more we can count on their future happiness, citizenship, and contributions.”

http://www.stompoutbullying.org

http://www.thetrevorproject.org

Tara Buck supports The Advocates, this organization works to prevent domestic violence and sexual assault in our communities through education, shelter and supportive services. Tara tells the Vault exclusively: “The fighting voice for women who are in crisis. It’s special to me because it is located in and supports the community of women I grew up in. What an amazing organization!!!”

Further Tara supports The Amanda Foundation. “Animals have been a big part of my life. They are our protectors, companions, therapists and we must be theirs in return”, Tara says. The Amanda Foundation is a nonprofit organization that rescues dogs and cats who, through no fault of their own, are spending their last days at City and County Shelters.

http://www.theadvocates-aplacetogo.org

http://www.amandafoundation.org

Dale Raoul has a very personal reason to support the Alzheimers’ Association, her mother died from this terrible disease in 2007.

The Alzheimer’s Association is the leading, global voluntary health organization in Alzheimer care and support, and the largest private, nonprofit funder of Alzheimer research.

http://www.alz.org

Picture of Deborah Ann Woll holding some items signed at Comic-Con, including the DVD in this auction. The picture was taken just for eBay authenticity.

This auction is for the DVD’s of Season 2 of the quirky vampire series True Blood which includes all 12 episodes of the show’s second season on five discs. Extras with the set include audio commentaries, a rundown on the rules for living in the Fellowship of the Sun, and more.

This sale of this SEASON 2 DVD SIGNED by TRUE BLOOD’s cast and creators will benefit the Choroideremia Research Foundation.

Choroideremia is a hereditary degenerative eye disease that erodes the peripheral vision and erodes it slowly over time until total blindness. The connection of True Blood and Choroideremia? Deborah Ann Woll’s (Jessica Hamby) boyfriend has this disease and several members of his family have it as well.

Doctors working on a treatment say they are close but need only a couple of million dollars to make a real difference.

All the money from this ebay item (minus any Paypal/ebay/shipping fees) will go straight to the foundation to find a treatment for this terrible and little known disease.

The DVD was signed in the waiting room at the 2010 San Diego Comic Con before the TRUE BLOOD panel. It was signed by everyone in attendance. Including…

  • ALAN BALL- Show Creator
  • CHARLAINE HARRIS – Sookie Stackhouse author
  • ANNA PAQUIN – Sookie Stackhouse
  • STEPHEN MOYER – Bill Compton
  • DEBORAH ANN WOLL – Jessica Hamby
  • NELSAN ELLIS – Lafayette Reynolds
  • RUTINA WESLEY – Tara Thornton
  • SAM TRAMMELL – Sam Merlotte
  • JOE MANGANIELLO – Alcide Herveaux
  • KRISTIN BAUER VAN STRATEN – Pam De Beaufort
  • DENIS O’HARE – Russell Edgington

CLICK HERE TO PLACE YOUR BID.

Notes:

This is for charity so no returns or refunds of course. Please only bid if you can afford to pay what you’re bidding.

If you live outside the US I may have to change the shipping rate.

Amazing Race for Choroideremia research funding

Posted by Shadaliza On January - 20 - 2011

Meet Allie and Frank. Two brothers who would love to participate in the Amazing Race and raise awareness and funds for the eye disease called Choroideremia which Allie’s son has.

The cure for Choroideremia is just around the corner, all that is needed is money. Please support this cause and spread the word.

For more information about Choroideremia visit curechm.org

Another copy of the third book in the Sookie Stack house series, CLUB DEAD, signed by the True Blood cast is being auctioned off on eBay. The cast, Alan Ball and Charlaine Harris have signed the book at Comic Con 2010 in San Diego before they took the stage for their panel.

The book will be mailed as soon payment goes through and can be shipped to another country but may require additional charges for shipping.

Signatures include….

  • Alan Ball – show creator/writer/director/producer
  • Charlaine Harris – Author of the books
  • Stephen Moyer – Bill Compton
  • Anna Paquin – Sookie Stackhouse
  • Nelsan Ellis – Lafayette Reynolds
  • Rutina Wesley – Tara Thornton
  • Deborah Ann Woll – Jessica Hamby
  • Kristin Bauer van Straten – Pam De Beaufort
  • Denis O’Hare – Russell Edgington
  • Joe Manganiello – Alcide Herveaux
  • Sam Trammell – Sam Merlotte

To bid on this item, go here: http://cgi.ebay.com/ws/eBayISAPI.dll?ViewItem&item=280613259283

This is a very rare item and is the second one in existence.

100% of what is donated (minus paypal fees) will be going to the Choroideremia Research Foundation. The item was signed to help Deborah Ann Wolls boyfriend who has the disease and is going blind from it as well as his little brother and 6 year old nephew. visit www.curechm.org for further info on the disease and research.

No refunds please. All sales final. The book is in Tip top shape. Never read.

Visit www.curechm.org for further info on the disease and research.

What would make a better Christmas gift than a copy of the third book in the Sookie Stack house series signed by the True Blood cast? This rare collector’s is now up for auction on Ebay.

This copy of “Club Dead” by Charlaine Harris comes with the following signatures:

Alan Ball – show creator/writer/director/producer
Charlaine Harris – Author of the books
Stephen Moyer – Bill Compton
Anna Paquin – Sookie Stackhouse
Nelsan Ellis – Lafayette Reynolds
Rutina Wesley – Tara Thornton
Deborah Ann Woll – Jessica Hamby
Kristin Bauer van Straten – Pam De Beaufort
Denis O’Hare – Russell Edgington
Joe Manganiello – Alcide Herveaux
Sam Trammell – Sam Merlotte

The book was signed by the True Blood cast at Comic Con 2010 in San Diego before they took the stage for their panel.

The book is auctioned off to benefit the Choroideremia Research Foundation. The seller of this book is E.J. Scott, Deborah Ann Woll’s partner, who has Choroideremia and is going blind from it as well as his little brother and 6 year old nephew.

Check out the details and place your bid here.

Visit www.curechm.org for further info on the disease and research.

EJ Scott Runs Chicago

Posted by Lynnpd On October - 12 - 2010

Below is a link to a video where WCCO TV highlights EJ Scott for his efforts in running the Chicago Marathon last weekend.  EJ completed the race, which is a feat within itself, but he also did it blindfolded. We congratulate him.

Click on the image to watch the video:

E.J. Scott ran blindfolded in the Rock ‘n’ Roll Chicago Half Marathon in August, with his cousin, Ryan Carney, as his guide. And he was among the tens of thousands of runners in the Chicago Marathon this past Sunday. He wore number 15115—and a blindfold.

A regular performer at iO and The Annoyance Theatre with his team, The Diplomat Motel, Scott suffers from choroideremia (CHM), a genetic eye disorder that causes progressive vision loss. Doctors told the 34-year-old that prolonged exposure to sunlight in the 26.2-mile race would cause further damage to his sight, so Scott will be running with his eyes covered and a guide by his side.

I think this will be my first and last marathon,” he says, laughing.

Scott, whose sight troubles began as a teen—knocking into things and experiencing blinding flashes—was diagnosed with CHM in March 2003. The New York native’s worsening sight prompted his 2008 move to Chicago from L.A., where he was pursuing acting. (Scott’s girlfriend, True Blood actress Deborah Ann Woll, still lives there). Today, his diminished vision—“like looking through two paper towel rolls”—keeps him using a cane and wearing glasses.

The genetic disorder—his younger brother, Kevin, and their nephew, Liam, also suffer from CHM—occurs mostly in males and affects an estimated one in 50,000 people.

It wouldn’t be so bad if it was just me dealing with this,” he says, adding that his grandfather went blind in his 40s. “It really shook the foundation of my family.”

As of Monday, 10/11/10, Scott says, his fundraising for choroideremia awareness exceeds $100,000. Yesterday, The Annoyance Theatre in Andersonville hosted Comedy for a Cure, a benefit show for choroideremia featuring a litany of improv luminaries, including T.J. Jagodowski and Susan Messing. All proceeds from the event went to the Choroideremia Research Foundation.

To read the rest of this interview go to: Chicago Magazine

Video source: wcco.com

The Chicago Press has highlighted Deborah Ann Woll’s boyfriend, EJ Scott about his running of the Chicago Marathon tomorrow, Sunday October 10.

In his continuous efforts to raise funds and awareness for Choroideremia, E.J. Scott will run in the marathon, one of the fastest courses as well as one of the most scenic. However, for EJ, who suffers from choroideremia, this trip will not be scenic. Cheered on by Deborah, who plays Jessica in True Blood, he will not only run the event but do it blindfolded.


Deborah Ann Woll and EJ Scott

Below is a video about EJ’s efforts to run the marathon where he talks about his disease and his quest to raise money to find a cure.  Click on the image to be taken to the CBS site to see the video.

Monday night at the Annoyance (8 p.m., 4830 N. Broadway in Chicago), Scott will host a benefit for choroideremia and a celebration, he hopes, of his completing the marathon. The superstars of Chicago improv will be there, including Susan Messing, T.J. Jagodowski, David Pasquesi, and frequent Second City director Mick Napier.

SUPPORT E.J. and help him to reach his goal of raising $100.000 in one year for THE CHOROIDEREMIA RESEARCH FOUNDATION.

You can make your donation through his blog:
http://ejcurechm.blogspot.com/

This link will go directly to the foundation and E.J. will be credited with the amount that you donate so he can keep track of the $100,000 he is trying to raise.

You can write a CHECK to The Choroideremia Research Foundation
23 East Brundreth St
Springfield, MA 01109
In the memo box mention EJ Scott.

Donations are tax deductible for US residents

For more information about the CRF visit curechm.org
E.J. Scott’s CRF page on Facebook facebook.com/group.php?gid=30530756158

source: chicago.cbslocal.com

Blindfolded march to Harpo Studio for Choroideremia awareness

Posted by Shadaliza On October - 2 - 2010

E.J. and Deborah

In his continuous efforts to raise funds and awareness for Choroideremia, E.J. Scott, partner of True Blood actress Deborah Ann Woll, will march BLINDFOLDED to the HARPO STUDIOS in Chicago in an attempt to attract the attention of Oprah.

E.J. explains his action on Facebook. “I have an eye disease called Choroideremia and I’m going blind. I’m looking to generate some attention for the disease and for the blind. I’m a big Oprah fan and think she’s done a lot of good things for a lot of people. I’m hoping she’ll do something good for the blind and have a special or something. Just something to let people know that it is not cured yet. I’m hoping at the very very least to get some publicity from news about the demonstration. This is a very peaceful non aggressive approach I’m trying to take. I just want my voice heard and to be seen. My brother has this same disease and my 5 year nephew has it as well. And it will keep going through the generations if it isn’t stopped.”

The march will be held on October 13th at 10 am, starting in Andersonville (the corner of Berwyn and Clark) and ending at the HARPO STUDIOS in Carpenter Street, approx 7.5 miles. E.J. will walk the distance BLINDFOLDED.

You are invited to join E.J. (blindfolded or not) and help him raise awareness and save the sight that he has left.
More information on the event’s Facebook Page http://www.facebook.com/event.php?eid=135594739821187

SUPPORT E.J. and help him to reach his goal of raising $100.000 in one year for THE CHOROIDEREMIA RESEARCH FOUNDATION.

You can make your donation through his blog:
http://ejcurechm.blogspot.com/

This link will go directly to the foundation and E.J. will be credited with the amount that you donate so he can keep track of the $100,000 he is trying to raise.

You can write a CHECK to The Choroideremia Research Foundation
23 East Brundreth St
Springfield, MA 01109
In the memo box mention EJ Scott.

Donations are tax deductible for US residents

For more information about the CRF visit curechm.org
E.J. Scott’s CRF page on Facebook facebook.com/group.php?gid=30530756158

To learn more about E.J., you can read the interview we did with him last year here.

Comedy for a Cure – Choroideremia

Posted by Lisafemmeacadienne On September - 29 - 2010

As many True Blood fans already know, Deborah Ann Woll (Jessica) has a boyfriend with a degenerative eye disease called choroideremia. He organizes fundraisers for the research of this disease; his latest effort is Comedy for a Cure.

Date/Time: Monday, October 11 at 7:30pm

Place: The Annoyance, 4830 N. Broadway, Chicago, IL

Suggested Donation: $10.00

“Join me and some of Chicago’s best improv talents for a night of improv, comedy, food, raffles and fun!!!

No reservation required. FREE FOOD!!!

There will be a special Messing with a Friend
There will be a special Chicagoland
There will be a special performance from Mick Napier
There will be much much more.
Please come, you won’t be sorry.” -E.J. Scott

For more information, visit the Facebook page for this event.

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