Archive for the ‘Choroideremia Research Foundation’ Category

12 Marathons in 12 states in 2012 for a Cure for Choroideremia

Posted by Shadaliza On January - 8 - 2012

 

Basically there is only one thing standing in the way of finding a cure for Choroideremia: money, or better the lack of it.

EJ Scott, boyfriend of Deborah Ann Woll, has set his mind to raise funds for the Choroideremia Research Fundation with an extraordinary athletic endeavor: EJ is planning to run 12 marathons in 12 states in 2012. To protect his eyes from the damaging sun he will run the marathons blindfolded with the aid of his cousins who will guide him. He hopes to raise $12,000 per marathon.

Choroideremia is a rare inherited disorder that causes progressive loss of vision and leads to total blindness. At this time, there is no treatment or cure for this disease.

EJ has been busy promoting his fundraiser with an appearance on the Dr. Drew Show and a video on AOL.

 


 

 

 

EJ will kick off with the Arizona Rock ‘N’ Roll marathon on Sunday January 15th which will start from Downtown Phoenix.

You can follow EJ on Facebook and Twitter.

 

Support EJ and donate directly and safely to the Choroideremia Research Foundation by credit card using the PayPal button here below. Donations are tax deductible for US residents.


This PayPal button was provided to the Vault by Cory MacDonald, Executive Director of the Choroideremia Research Foundation.

 

Deborah Ann Woll & EJ Scott chat on TP with TP Podcast

Posted by Shadaliza On November - 6 - 2011

Deborah Ann Woll and her boyfriend EJ Scott chat with Tomm Polos on his podcast TP with TP.

Listen to the podcast on iTunes.

The first half of podcast is all about Deborah who discusses her career and that she was born to be a vampire on True Blood since her skin is already so pale. She is asked about her role of Jessica and her other film projects as well.

In the second half, EJ Scott joins Deborah and they both talk about his winning the Chris Farley award and also EJ’s illness of Choroideremia.

EJ discusses his upcoming fundraising efforts and how he plans to do “12 marathons in 12 states in 2012″ to raise awareness and funds for the Choroideremia Research Foundation.

 

You can read more about EJ’s efforts via:

Facebook: https://www.facebook.com/12marathons2012
Twitter: @12marathon2012.

EJ says that even if you can’t afford to donate, you can help him by tweeting and posting about it.  Anything you can do to promote EJ’s effort and what other’s are doing to cure this illness, will be appreciated.

EJ Scott and Deborah Ann Woll are auctioning off a very unique item over at eBay, an Alexander Skarsgård standee cut-out figure signed by many of the True Blood cast and crew.

At the San Diego Comic Con 2010, Alexander Skarsgård was unable to attend and a standee cut out was used during the True Blood panel in his absence. The cut out was then signed and given to EJ Scott to raise money for the Choroideremia Research Foundation.

EJ is always trying to raise awareness and funds to find a cure for his illness Choroideremia and in 2012 he will be running 12 full marathons in 12 states in hopes of raising an average of at least $12,000 per marathon.

The money raised from this auction will be donated to the Foundation as part of EJ’s personal 2012 goal.

Since last year he and Deborah have been getting more and more people associated with True Blood to sign the Alex cut-out which now totals 60 signatures and he has put it up for auction. At the auction web address you can see a full list of who has signed the item.

Hurry on over to EBay and get all the details and make your bid on this unique item being offered for charity by clicking on this link: ebay.com.

Deborah and EJ at the True Blood s4 premiere

EJ Scott, the partner of True Blood actress Deborah Ann Woll, has Choroideremia. Choroideremia (CHM) is a rare inherited disorder that causes progressive loss of vision and leads to total blindness. At this time, there is no treatment or cure for this disease. Doctors working on a treatment say they are close but need only a couple of million dollars to make a real difference.

EJ is tireless in his efforts to raise funds for the Choroideremia Research Foundation and raise awareness for the disease. Last year EJ ran the Chicago marathon blindfolded because his eyes are very light sensitive.

In 2012 he will take fundraising to a whole new level: EJ will run 12 marathons in 12 cities!

 

 

 

This is EJ’s story:

As you may or may not know I have an eye disease called CHOROIDEREMIA (CHM) which is slowly causing me to go blind. My 6 year old nephew and brother also have this disease and my mother, sister and aunt are all carriers. (my grandfather also had the disease and was blind from it).

Since I found out in 2003 I have been trying to raise awareness and money for a treatment. Through the CHOROIDEREMIA RESEARCH FOUNDATION (CRF).

Last year I ran 2 half marathons and 1 full marathon in Chicago, all blindfolded. I was fortunate to get some local television and print publicity from it and I’m hoping for a lot more from this.

I also raised $14,000 losing 70lbs. All for the CRF.

Starting January 2012 I will be running one marathon a month in a different city each time. All Blindfolded. The goal is to raise an average of $12,000 per marathon ($144,000 all together by the end of 2012/ beginning of 2013.) I am running blindfolded because I am extremely sunlight sensitive and the sun would be very difficult and dangerous on my eyes for long amounts of time.

The first Marathon in January 2012 will be in Arizona!!! I’m already signed up.  I am NOT a runner. This stuff is very new and alien to me, so it will be a very big challenge. I’ll need all the support I can get.

Thanks so much everybody.

 

Here at The Vault we will continue our support for EJ and the Choroideremia Research Foundation. Today we transferred the first donation of $760, raised with an online auction of a portrait signed by Deborah, into EJ’s 12 MARATHONS in 12 CITIES Fund of the CRF and we have some great activities lined up for the future.

 

How you can support EJ and the battle against Choroideremia

You can donate by check or wire transfer, the required information can be found on The Choroideremia Research Foundation website.

Or donate directly and safely to the Choroideremia Research Foundation by credit card using the PayPal button here below. Donations are tax deductible for US residents.


This PayPal button was provided to the Vault by Cory MacDonald, Executive Director of the Choroideremia Research Foundation.

EJ during his last marathon

Fundraiser news: the numbers for June and July

Posted by Shadaliza On July - 25 - 2011

 

In June and July The Vault and AllStephenMoyer.com held auctions for 4 different charitable causes and raised over $4400. Thank you all for your generosity!

 

For Stephen Moyer’s Facing The Atlantic:

The Venice Magazines signed by Anna and Stephen sold for $700 to Anne who also bought the Vive le Rock t-shirt personalized signed by Stephen for $610 a couple of weeks later.

The Bullett Magazine and Bullett shoot photo signed by Stephen went for $700 to Jennifer.

The raffle of a FHM Magazine signed by Stephen raised  $382 and was won by Kristin.

 

Kristin Bauer auctioned off a Skype call for $255 for IFAW and the winner Danielle got her money’s worth because they spoke for an hour.

 

For the CRF we auctioned a potrait of Deborah Ann Woll signed personalized and a SFX Magazine signed by Deborah, Anna and Stephen. The combo sold to Erik for $760. He also received the original photos of Deborah posing with the items.

 

And a very special auction that ended last night for the Jesse Cartwright Trust Fund. The True Blood Season 2 pack signed by various cast members was sold for $1017 to Cecile.

Teaser for Upcoming CRF Auction

Posted by Lynnpd On July - 17 - 2011

EJ Scott, partner of True Blood’s Deborah Ann Woll is planning a new auction which should be launched sometime soon. EJ tells us that what he is auction is going to be a great item, but he is teasing with us and won’t tell us yet what it is. He will only provide this photo below, as a clue:

This was all he would tell us about the auction:

Well I have been waiting a long time to be talking about this auction item that I’ll be putting up pretty soon. I thought it would be fun to tease it a little. so attached is a picture of the tease. I think this just might be the greatest True Blood fan item EVER, so I’ll be asking for a minimum four figures beginning bid when it goes up.

Thanks so much for your continued support and help guys!! :) 

So, we’ll just have to wait to find out what the item is going to be. I think I know who that is, but what the item is, still escapes me. At any rate, all proceeds from the auction will, of course, go to  EJ’s and Deborah’s charity, the Choroideremia Research Foundation, so it’s certainly worth bidding on.  Look for the auction coming soon!

Deborah Ann Woll has teamed up with The Vault for a very special auction that will benefit the Choroideremia Research Foundation.

In close collaboration with Deborah we are auctioning off the following items:

- Unique portrait signed PERSONALIZED for you by Deborah. You will also receive a HANDWRITTEN PERSONAL note from Deborah.

- SFX UK Magazine: double vampire and True Blood issue signed by Deborah Ann Woll, Anna Paquin and Stephen Moyer.

 

The auction ends on Sunday July 17. Place your bid on eBay: http://r.ebay.com/U3mHUf

 

The Portrait:

Made by Croatian artist Tamara Grozaj, this drawing is a combination of dry pastel and colored pencils for the details, on Fabriano pastel paper, dimensions: 42 x 30 cm (16.5 x 11.8 in). About Tamara’s inspiration: “I am a fan of both True Blood and Deborah inspired me to draw her, Jessica is one of my favorite characters from the series.” See more of Tamara’s work on Deviantart.

Deborah Ann Woll will sign this beautiful portrait personalized with your name. You will also receive a handwritten note with a personal message for you from Deborah.


 

SFX UK Magazine

SFX Collections Special Edition Vampires consists of 2 magazines inside a cardboard outer sleeve. One magazine is a special on Vampire shows and movies the other is a True Blood special with interviews, complete guide to season 1-3, Bon Temps tourist brochure and much more. Each magazine is 100 pages. This special edition was not available outside the UK. For more info about this magazine see our post.

The outer sleeve is signed by Deborah Ann Woll, Anna Paquin and Stephen Moyer. The True Blood magazine is signed on the cover by Anna Paquin and Stephen Moyer and signed inside by Deborah Ann Woll. That is a total of 6 autographs.

 

 

All proceeds minus fees will be donated to the Choroideremia Research Foundation.

E.J. Scott, the partner of True Blood actress Deborah Ann Woll, has Choroideremia. Choroideremia is a rare inherited disorder that causes progressive loss of vision and leads to total blindness. At this time, there is no treatment or cure for this disease. But with enough funding clinical trials can be started within the next couple of years. For more information about the CRF visit curechm.org or our special CRF page.

 

True Blood S2 Blu-Ray signed by Cast auctioned for Charity

Posted by Shadaliza On June - 2 - 2011

What a wonderful opportunity to win a unique True Blood season 2 Blu-Ray signed by many cast members and support Deborah Ann Woll’s charity of choice at the same time.

The Blu-Ray has 12 autographs: 10 cast members, Alan Ball and Charlaine Harris.

The Blu-Ray was signed specifically to be auctioned and raise money for CHOROIDEREMIA RESEARCH. Choroideremia is a degenerative and hereditary eye disease that attacks the peripheral vision and slowly erodes it over time until total blindness.Deborah Ann Woll’s boyfriend (as well as his brother and nephew) have this disease.

So hurry over to eBay and place your bid here.

 

 

I’m sure our readers all know about True Blood’s Deborah Ann Woll’s boyfriend, EJ Scott who diagnosed with Choroideremia has been fighting for a cure for several years.  Here’s another valiant person who is helping in the fight, Jeff Benelli.

Like EJ, Jeff who is Legally-blind and a  resident of Kansas City Suburb, Overland Park has run six marathons in five years; raises more than $106,000 to fund research and a cure for his degenerative eye disease.

Jeff Benelli was today announced a semi-finalist in the Energizer Bunny ‘Keep Going’ Hall of Fame – which celebrates people who make a positive impact and inspire the world through their perseverance, determination, and boundless energy. Benelli, who is legally blind, having been diagnosed with the degenerative eye disease Choroideremia (CHM), has run a total of six marathons in the past five years while raising more than $106,000 to fund a cure for himself, his nephew, and others.

If named a finalist, Benelli will win a $1,000 donation to the charity of his choice, the CRF. The grand-prize winner will win a $5,000 donation, $10,000 cash, and a trip to St. Louis, Missouri. If named the grand-prize winner, Benelli plans to donate the entire $10,000 to the CRF.

Facebook users will choose one of the ten finalists by visiting facebook.com/energizer starting March 17, 2011 and voting for their favorite candidate. Once the finalists have been announced on April 4, 2011, individuals can visit www.energizer.com/halloffame to place their vote for the grand-prize winner.

Only about 7,000 males in the United States have CHM. Since CHM is a single-strain genetic defect that is specifically identified – its cure will likely benefit the more than 2 million Americans living with more common and related genetic retinal degenerative disorders.

Vote for Jeff Benelli to raise awareness for the CRF!!…… by clicking here!

For more information, visit curechm.org.

Read more about the Vault’s Fundraiser for the CRF by clicking on the banner below.

A second charity auction for the CRf of this unique True Blood Season 2 DVD signed by Alan Ball and many cast members. Only weeks ago EJ Scott, Deborah Ann Woll’s boyfriend, listed this item on eBay for a charity auction to benefit the Choroideremia Research Foundation. Unfortunately the auction winner turned out to be a loser who didn’t pay the $1500 bid he had placed. Shame on you!

So this time around only bid if you are serious. Deborah was heartbroken when the auction failed because of dishonesty.

As an extra bonus prize, Deborah will sign a personalized headshot for the auction winner!

For more info about the items and to place your bid: http://r.ebay.com/uyWVMq

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